RESOURCES
Living Well With Chronic Pain series
Booklets and Guides
Recursos en Español
Infographics and handouts
Download the PDF: Diabetic Foot Care
Download the PDF: Acute to Chronic Pain
Download the PDF: Veterans & Pain (2 pages)
Download the PDF: Understanding Nerve Injuries
Download the PDF: Types of neuromodulation therapies
Download the PDF: Create your pain management plan
Download the PDF: What is telehealth?
Download the PDF: Questions to ask about spinal cord stimulation
Download the PDF: Safe dosing guide
Download the PDF: Our community demographics
Download the PDF: Understanding the federal report on pain
Download the PDF: Osteoarthritis patients’ unmet needs
Download the PDF: Neuromodulation myth vs. fact
Download the PDF: Crafting an
op-ed or letter to the editor
Download the PDF: How to read OTC label
Download the PDF: Veterans & Headache Disorders (2 pages)
Mindful Meditations
Mountain Meditation – relaxing with self-compassion
Healing Light and Being Restored – resiliency and strength
Global Pain Association: Virtual Series
After five years of providing essential information and support to individuals living with chronic pain in San Antonio and beyond, the Global Pain Association (GPA) will be ceasing its operations. To continue its vital mission, GPA has aligned with the U.S. Pain Foundation (U.S. Pain), a national 501(c)(3) nonprofit with a shared commitment to improving the lives of those affected by chronic pain. U.S. Pain will now host the valuable educational resources previously offered by GPA. To find a collection of GPA’s virtual series, offering expert insights on a wide range of chronic pain topics, click here and view the YouTube playlist, Global Pain Association: Virtual Series.
As always, know that the information provided is educational only. It is not meant to take the place of your health care provider; you should always consult with your practitioner about your unique health situation. The U.S. Pain Foundation does not recommend or endorse any one therapy, treatment, or product.
Interested in ordering print materials, free of charge?
INvisible Project magazines
Since 2010, U.S. Pain Foundation has published more than 20 issues and distributed an estimated 100,000 copies of the INvisible Project magazine, featuring articles from experts and in-depth stories about real people’s experiences with chronic pain.
Additional resources
U.S. Pain has compiled a working list of external resources. These resources are provided for educational purposes only. U.S. Pain does not endorse or recommend the use of any particular product, medication, remedy, procedure or therapy. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding your medical condition and appropriate treatment. If you are experiencing a health emergency, call 911 immediately. If you have a resource you think we should add, email [email protected].
General
Related organizations
Groups for pain patients
American Chronic Pain Association
For Grace
Give Pain A Voice
The Pain Community
Groups for pain specialists, researchers or advocacy
The American Academy of Pain Medicine
Alliance to Advance Comprehensive Integrative Pain Management
Chronic Pain Research Alliance
Alliance for Balanced Pain Management
Society for Pediatric Pain Medicine
Groups and coalitions for general chronic conditions
Chronic Disease Coalition
Empowered Patient Coalition
Engaged Patients
I am essential coalition
Invisible Disability Association
Patients Rising
Partnership for Fighting Chronic Disease
Groups for specific pain conditions
American Cancer Society
American Childhood Cancer Organization
Arthritis National Research Foundation
Arthritis Foundation
Association of Migraine Disorders
Clusterbusters
Children’s Diabetes Foundation
Children’s Liver Disease Foundation
Dysautonomia International
Dysautonomia Center for Excellence
The Ehlers-Danlos Society
Ferocious Fighters (CRPS)
Global Genes
Gout
International Foundation for Functional Gastrointestinal Disorders
Interstitial Cystitis Association
Juvenile Arthritis Association
Juvenile Diabetes Research Foundation
Kids Get Arthritis, Too (Arthritis Foundation)
National Cancer Institute
National Headache Foundation
National MS Society
National Organization for Rare Disorders
National Vulvodynia Association
Reflex Sympathetic Dystrophy Syndrome Association
TMJ Association
Chiari Malformation Fact Sheet
Treatment, safety, and research
Pain management
General
U.S. Pain’s treatment options page
U.S. Pain’s Pain Patient Bill of Rights
What to do if you are denied proper pain management
CMS Journey Map
TED Talk: “The mystery of chronic pain”
WebMD: Pain Management Guide, Treatment & Care
American Society of Anesthesiologist’s guide to pain management
Complementary medicine
U.S. Pain’s complementary medicine treatment page
U.S. Pain’s complementary medicine advocacy page
Alternative pain treatment directory
Complementary and integrative medicine – MedlinePlus
National Center for Complementary and Integrative Medicine at the NIH
Medical cannabis
U.S. Pain’s medical cannabis information page
U.S. Pain’s medical cannabis advocacy page
Americans for Safe Access
Center for the Study of Cannabis and Social Policy
Healer
Leafly: The World’s Cannabis Information Resource
Medicinal Marijuana ProCon
NORML: Working to reform marijuana laws
The Answer Page
Medical Cannabis as a Tool to Combat Pain and the Opioid Crisis: A Blueprint for State Policy
Treatment news and blogs
Aches and Gains with Dr. Paul Christo
Pain Medicine News
Pain News Network
Practical Pain Management
Health-Union
Pain-health
Patient and medication safety
General
Consumer Safety
WHO Patient Safety
DrugDangers
General medication safety
Get Relief Responsibly
Know Your Dose
Know Your OTCs
Consumer Safety Guide
Medication Safety for People with Disabilities
Preventing opioid diversion and misuse
Up and Away
Physicians for Responsible Opioid Prescribing
RxSafe Marin
SaferLock Rx
Strategies to Prevent Opioid Misuse, Abuse, and Diversion That May Also Reduce the Associated Costs
U.S. Pain’s page on balanced opioid reform advocacy
American Society of Anesthesiologists Opioid Abuse information
Substance use disorder treatment and resources
Learn to Cope
National Coalition Against Prescription Drug Abuse
Shatterproof
The Medicine Abuse Project
Start Your Recovery
Rehab Programs
Advocates for Opioid Recovery
Research and clinical trials
General
U.S. Pain’s page on research and clinical trials
Databases of research articles
Cochrane Library
Free Medical Journals
Google Scholar
PubMed
Medline
Research news and journals
Anesthesia and Pain MedicinePractical Pain Management
Journal of Pain
Journal of Pain and Symptom Management
Medical News Today – pain /anesthetics
Pain
Pain Medicine
Pain Management Nursing
Science Daily – pain control news
Research groups
Chronic Pain Research Alliance
NIH Pain Consortium
Pain Research Forum
Emotional well-being and quality of life
Mental health and suicide prevention
General
U.S. Pain’s page on mental health and suicide
Pain Connection
4 Tips to Help with Chronic Pain and Depression
HelpGuide
Practical Pain Management: The Comorbidity of Chronic Pain and Mental Health Disorders
Mental health treatment
American Psychological Association
National Association of Social Workers
National Board of Certified Counselors
Talkspace – online therapy
Theravive
Suicide prevention
American Association of Suicidology (202-237-2280)
National Suicide Prevention Lifeline (800-273-8255)
National Hopeline Network
Suicide Prevention Resource Center
Quality of life
General
WebMD: 11 Tips for Living With Chronic Pain
The Mighty: 15 Tips for Coping with Chronic Pain
Blogs
But You Don’t Look Sick
ChronicBabe
Golden Graine
The Mighty
Pathway to Mindfulness blog
Toni Bernhard
Support groups
Pain Connection
mychronicpainteam
Apps
branch
My Chronic Pain Diary
WebMD Pain Coach
Art and writing programs
PainExhibit
Books on chronic pain
By patients and caregivers:
No, It Is NOT In My Head: The Journey of a Chronic Pain Survivor from Wheelchair to Marathon Nicole Hemmenway
It Hurts Like Hell!: I Live With Pain — And Have A Good Life Anyway Ellen Lenox Smith
Not Lying Down – How I Conquered Years of Pain to Triumph at the Finish Line Carole Staveley
Silent Courage: my lifelong journey through pain to wellness Mary Byrne Eigel
We’re In This Together: A Caregiver’s Story Rob Harris
Battle for Grace Cynthia Toussaint
By clinicians, researchers or other experts:
Conquer Your Chronic Pain: A Life-Changing Drug-Free Approach For Relief, Recovery, and Restoration Peter Abaci, MD
A Nation in Pain: Healing Our Biggest Health Problem Judy Foreman
The Empowered Patient Julia Hallisy, MD
The Chronic Pain Solution by James Dillard MD, DC, CAc
The Pain Companion: Everyday Wisdom for Living With and Moving Beyond Chronic Pain Sarah Anne Shockley
Living Well with Pain and Illness: The Mindful Way to Free Yourself from Suffering
Vidyamala Burch
Take Charge of Your Chronic Pain Peter Abaci, MD
Pain Tracking – Your Personal Guide to Living Well with Chronic Pain Deborah Barrett
Full Catastrophe Living: Using the Wisdom of Your Body and Mind to Face Stress, Pain, and Illness Jon Kabat-Zinn
The Power of Breath: The Art of Breathing Well for Harmony, Happiness, and HealthSwami Saradananda
The Relaxation and Stress Reduction Workbook Martha Davis and Elizabeth Robbins Eshelman
Wisdom to Wellness: Healing Your Emotional Sufferings so the Physical Healing Can Follow
Maureen Minnehan Jones
Confronting Chronic Pain Steven H. Richeimer, MD, with Kathy Steligo
Defeat Chronic Pain Now! Bradley S. Galer, MD, and Charles E. Argoff, MD
Sleep tips
Guide to sleep for people with disabilities
Pain and sleep
Travel tips
Insurance and finances
Insurance coverage
Financial assistance
General
Need Help Paying Bills
Retail savings for those with disabilities
Prescription assistance
CARE Pharmacies Cooperative Inc.
Needy Meds Drug Discount Card
Patient Advocate Foundation (A Nonprofit Co-Pay Relief Program)
Medication Assistance Tool
Pfizer RxPathways: Connecting Patients to the Help They Need
RxAssist – National Database
Your Pharmacy Benefit
Treatment assistance and grants
Giving Angels Foundation
Good Days – Direct Financial Assistance
Help Hope Live
Hill-Burton Free and Reduced-Cost Health Care
Quest Diagnostics Patient Assistance Program
General financial grants
Friends of Man
Health Well Foundation
Patient Services Inc.
PAN Foundation
Medical housing
Edmond J. Safra Family Lodge at NIH
Healthcare Hospitality Network
Hospitality Homes
Medical transportation
Air Care Alliance
Air Charity Network
Angel Flight Central
Lifeline Pilots
Mercy Medical Angels
Miracle Flights
Patient Airlift Services (SkyHope Pals)
Utilities and other expenses
Campaign for Home Energy Assistance
Education and scholarships
College Life – scholarship for students with disabilities
Financial Aid for Students with Disabilities
Fighting Back Scholarship Program
Resources for specific populations
Individuals with disabilities
General
Disability Rights Advocates
A Guide to Disability Rights Laws
Business Ideas for People with Disabilities
Social security assistance
Disability Secrets: An Overview of Social Security Disability Insurance
Social Security Administration Benefits For People With Disabilities
10 Myths and Facts About Social Security Disability Insurance
Worker’s compensation
Worker’s compensation glossary
All Law: Tips for Making Sure Your Workers’ Compensation Claim is Paid
SimplyWorkComp: Claim adjusters’ best tips to avoid workers’ comp missteps
Assistive devices and technology support
Access for Athletes – Challenged Athletes Foundation’s (CAF) Flagship Program
Alternatives in Motion
American Sleep Apnea Association – CPAP Assistance Program
Compare Electric Wheelchairs
CHASA Orthotic Grants
EnergyUnited Foundation Round-Up Program
LifeNets – The Wheelchair Project
M.O.R.G.A.N. Project, Inc. – Pediatric Disability Equipment Exchange Program
My Gym Challenged America Foundation
Online Shopping For Consumers With Disabilities
Wheelchair Recycler
Car and home modifications
A Seniors Guide to Mobility Friendly Homes
Fiat Chrysler – DriveAbility Program
General Motors Mobility Reimbursement Program
Rebuilding Together – National Headquarters
Special Kids Fund, Inc.
Guide dogs and therapy animals
Assistance Dog United Campaign
Canine Companions for Independence
Canine Partners for Life – Service Dog Program
Doggie Does Good
Educated Canines Assisting with Disabilities
Equestrian Programs – Greenwell
Freedom Service Dogs of America
Helping Hands: Monkey Helpers for the Disabled
National Education for Assistance Dog Services (NEADS)
Paws With A Cause
Summit Assistance Dogs
Support Dogs, Inc. – Assistance Dogs
The Gift of Sunshine (TGOS) – The Hope Chest
Prostheses assistance
Bowman Limb Bank Foundation
Ellen Meadows Prosthetic Hand Foundation
Heather Abbott Foundation
Limbs for Life Foundation
Mending Limbs Organization
National Amputation Foundation – Medical Equipment Give-A-Way Program
Caregivers
General
How Caregivers Can Take Care of Themselves
Question for caregivers to help themselves
How to Recognize, Avoid, and Prevent Caregiver Burnout
A Not-To-Do List For Caregivers of the Chronically Ill
How to Help Your Caregiver
Caregiver Pathways: Stuart Smith, Caring For His Wife – recommended
Caregiver groups
Caregiver Action Network – recommended
Family Caregiver Alliance
National Alliance for Caregiving
Partners in Healing
Today’s Caregiver
College students
General
Best Colleges: College Guide for Students with Physical Disabilities
WebMD: Managing the Stress of Chronic Disease at College-WebMD
The Mighty: 9 Important Tips for College Students Battling Chronic Illness
Scholarships
College Life – scholarship for students with disabilities
Financial Aid for Students with Disabilities
Fighting Back Scholarship Program
Patient Advocate scholarship
NeedyMeds scholarship listing
Loan forgiveness for students unable to work
Total and permanent disability loan discharge
Pediatric patients and parents
General
The Coalition Against Pediatric Pain – recommended
Healthy Children
Stop Childhood Pain
Education & safety
2017 Safe Kids Medicine Safety Campaign – recommended
Financial assistance
Chai Lifeline
Casey Cares
Cure Our Children Foundation – Take My Hand Program
The Coalition Against Pediatric Pain Family Assistance Fund
First Hand Foundation
Gene Giraffe Project
Little Star Foundation
Maggie Welby Foundation
Pediatric Angel Network
Ronald McDonald House Charities
Ryan Scott Kappes Foundation
Wish fulfillment and gifts
Bags of Fun – Gabby Krause Foundation
Kids Wish Network
Make A Wish
Netwish
Camps and activities
The Center For Courageous Kids – recommended
Camp Sunshine
Dream Street Foundation
Eagle Mount Bozeman
Serious Fun Children’s Network
Veterans
General
Coast Guard Employee Assistance Program
Operation Warrior Shield
Swords to Plowshares
Team Red, White & Blue
The Station Foundation
The Commit Foundation
Vet Center Programs
Brian Bill Foundation
Gary Sinise Foundation
Iraq & Afghanistan Veterans of America
Paralyzed Veterans of America
Stand Up For Heroes – Bob Woodruff Foundation
Vietnam Veterans of America
Wings for Warriors – recommended
USA Cares
Financial assistance, veteran transition, & other benefits
Catch a Lift
Injured Marine Semper Fi Fund
USA Cares
Special Operations Warrior Foundation
Veteran Seniors – Aging.com
Vet Tix
Health care and treatment assistance
All American Alternatives
Defense and Veterans Center for Integrative Pain Medicine
Department of Defense: Patient Safety
Fisher House
Lone Survivor Foundation
My HealtheVet
Home Base
Veterans Alternative
Veterans Choice Program
Veterans and Mesothelioma
Suicide & mental health
Cohen Veterans Network
Save A Warrior
VA National Center for PTSD
Veterans Crisis Line – Or Call: (800) 273-8255 (Press 1)
22KILL
National Alliance to End Veteran Suicide
Stop Soldier Suicide
Caregiver resources
Blue Star Families
Military and Veteran Caregiver Network
National Military Family Association
VA Caregiver Support
Older adults
Resources by disease state
Migraine and headache disease
Migraine & Cluster Organizations
Alliance for Headache Disorders Advocacy: allianceforheadacheadvocacy.org
American Academy of Neurology: aan.com
American Headache Society: americanheadachesociety.org
American Interventional Headache Society: interventionalheadache.net
American Migraine Foundation: americanmigrainefoundation.org
Association of Migraine Disorders: migrainedisorders.org
CHAMP – Coalition For Headache And Migraine Patients: headachemigraine.org
Cluster Headache Support Group: chsg.org
Clusterbusters: clusterbusters.org
Danielle Byron Henry Migraine Foundation
Migraine Research Foundation: migraineresearchfoundation.org
National Headache Foundation: headaches.org
National Institute of Neurological Disorders and Stroke (NINDS) – Migraine Information: ninds.nih.gov/Disorders/All-Disorders/Migraine-Information-Page
The Headache & Migraine Policy Forum: headachemigraineforum.org
Migraine & Cluster Support and Information
Chronic Migraine Awareness, Inc: facebook.com/ChronicMigraineAwareness/
Clusterbusters: https://www.facebook.com/clusterbusters/
Cluster Headaches Facebook Support Group: facebook.com/groups/17789934480/
Cluster Headaches Worldwide Support Group: clusterheadaches.com
Headache on the Hill: allianceforheadacheadvocacy.org/headache-on-the-hill/
HealthCentral: healthcentral.com/migraine
Healthline: healthline.com/health/migraine
Migraine.com: migraine.com
Migraine Again: migraineagain.com
MigraineDisease.com: migrainedisease.com
Migraine Support: facebook.com/SupportForMigraines
Miles for Migraine: milesformigraine.org
Move Against Migraine: facebook.com/groups/MoveAgainstMigraine
MyMigraineTeam: mymigraineteam.com
Out of My Head Film: outofmyheadfilm.com
The Migraine World Summit: migraineworldsummit.com
Migraine Blogs
Adventures of a Spoonie Mom: adventuresofaspooniemom.com
Ashley Hattle: ashleyhattle.com
Chronic Migraine Awareness: chronicmigraineawareness.blog
Dawn C. Buse, PhD: dawnbuse.com
Golden Graine: goldengraine.com
Her Migraine Life: facebook.com/Her-Migraine-Life-330896290399035/
Making of a Brave Man: facebook.com/makingofabraveman
Migraine Diva: themigrainediva.blogspot.com
Migraine Ninja: migraine.ninja
Migraine Warrior: migrainewarriorblog.wordpress.com
The Daily Headache: thedailyheadache.com
Headache Tracking Tools, Online Diaries and Assessments
BonTriage: bontriage.com
Curelator: curelator.com
iHeadache: iheadache.com
Migraine Buddy: migrainebuddy.com
MigrainePal: migrainepal.com
MigrainePro: migrainepro.com
Branch health: branch.health
Patients Like Me: patientslikeme.com
Osteoarthritis
Osteoarthritis Groups
Versus Arthritis: versusarthritis.org
Arthritis Foundation: arthritis.org
Arthritis National Research Foundation: curearthritis.org
Arthritis Research UK: arthritisresearchuk.org
Global Alliance for Musculoskeletal Health: bjdonline.org
Osteoarthritis Action Alliance: oaaction.unc.edu
Osteoarthritis Research Society International: oarsi.org
United States Bone and Joint Initiative: usbji.org
Osteoarthritis support and information
Arthritis-health: arthritis-health.com
CreakyJoints: creakyjoints.org
HealthCentral – Osteoarthritis: healthcentral.com/osteoarthritis
Movement Is Life: movementislifejourney.com
Osteoarthritis and Sport/Exercise Facebook page: bit.ly/oasportsFB
OA Knee Pain: oakneepain.co.uk
Oh My Arthritis: ohmyarthritis.com
Start Moving Start Living: startmovingstartliving.com
Rheumatoid arthritis and disease
RA/RD Groups
American College of Rheumatology: rheumatology.org
Arthritis Foundation: arthritis.org
Arthritis National Research Foundation: curearthritis.org
Johns Hopkins Arthritis Center: hopkinsarthritis.org
Kids Get Arthritis, Too: kidsgetarthritistoo.org
National Institute of Arthritis and Musculoskeletal and Skin Diseases: bit.ly/NIAMSorg
Rheumatoid Patient Foundation: rheum4us.org
RA/RD Support
Arthritis Introspective: arthritisintrospective.org
Creaky Joints: creakyjoints.org
Healthline: healthline.com/health/rheumatoid-arthritis
RA HealthCentral: healthcentral.com/rheumatoid-arthritis
RheumatoidArthritis.net: rheumatoidarthritis.net
Rheumatoid Arthritis: rheumatoidarthritis.org
MyRATeam: myrateam.com
RA/RD Blogs
All Flared Up: allflaredup.wordpress.com
Arthritic Chick: arthriticchick.com
From This Point Forward: fromthispointforward.com
RA Adventure Rider: midnightflier.blogspot.com
RA Warrior: rawarrior.com
RheumaBlog: rheumablog.me
Rheumatoid Arthritis Guy: rheumatoidarthritisguy.com
Tracking Tools, Online Diaries and Assessments
ArthritisPower: arthritispower.org/app
Branch Health: branch.health
Complex regional pain syndrome
CRPS organizations
International Research Consortium on CRPS http://www.crpsconsortium.org/
International Research Foundation for RSD/CRPS: http://www.rsdfoundation.org/
RSD Association: https://rsds.org/
CRPS support and information
Diagnosing and living with CRPS
Burning Nights: Burning Nights support groups
RSD support groups: https://rsds.org/find-a-support-group-near-you/
Chronic low back pain
National Scoliosis Foundation: scoliosis.org
North American Spine Society: spine.org
United Spinal Association: unitedspinal.org
United States Bone and Joint Initiative: usbji.org
World Spine Care: worldspinecare.org
Low back pain support and information
BackCare: backcare.org.uk
Back Pain video: worldspinecare.org/resources/about-your-spine
HealthCentral – Back pain: healthcentral.com/back-pain
Healthline – Back pain: healthline.com/health/back-pain