Being a parent/caregiver of a chronically ill child is never easy. Trying to balance your time and make the appropriate medical decisions can be extremely challenging and isolating.
As we know, pain is poorly misunderstood and inadequately treated in adults. The lack of recognition and help is magnified tenfold when children are concerned. This results in a complex maze in which parents/caregivers struggle to navigate the medical system, the school system, and the everyday struggles of growing up.
The Pediatric Pain Warrior program assists families of children with pain in finding a network of support and community through: